Wednesday, May 22, 2013

Wednesday 5/22/13 - 5 "seizures"

Just got up from a nap at 4:00. This started at 4:10 pm. on Wed. 5/22/13
The Lord moves FAST! This morning  pedi said we needed an MRI and if we could get in BEFORE seeing Dr Wilfong on Tuesday that would be even better. Well, they just called and we got an appointment FRIDAY!!!! I am really nervous because she will have to be sedated. But very excited/thankful that we are able to get all these test done so quickly.
This was today, Wednesday, 5/22/13 at noon. She just woke up from a nap. Notice she puts her left hand in her mouth for the first half and then her right hand for the second half.


These pictures are from 5/21/12. This is after her EEG. -which came back abnormal.

Video #2

second video...

This is the first video we took. On 5/17/13. 


from fb: talked to pedi again - and asked more specific questions (she cant give me 100% answers, I will get better ones on Tuesday from Neuro) but basically her EEG was NOT normal.. it was abnormal. no infantile spasms... but lots of spikes...and what it looks like is she is having seizures. (i feel like im about to burst into tears typing that word) also learned that when she is putting her hand in her mouth that it MAY be an indicator of where in the brain her seizures are starting.... so she starts with her left hand in her mouth and as the seizure goes on she then goes to the right hand. Just something pedi said to watch and record so neuro will know more..ALSO she is seeing if we can get her an MRI .. hopefully before Tuesday but asap would be great. please pray for healing. and wisdom.