Wednesday, April 8, 2015

Update

Facebook Posts:



4/8/2015
Claire got to go to school today and she did good and has not cried or fussed today! Just sleepy! AND she is saying new things each day. Today she communicated with Jack saying "MY TURN" This is huge people!!!!!!!!!! Praise God. I know lots have been praying for her and the fact that she is doing so well on day 2 of this lowwwww dose is amazing! woo hoo!!!


4/7/2015
Yall please pray for Claire. We are in the process of getting her off of the medication because she is seizure free and has continued to be . . . Today we are trying again -Dr say no med in the morning and .5 ml at night. (Last time we tried it was TERRIBLE withdrawals) so please pray today is not so bad for Claire so she can be done with this stinky medicine asap. She is currently laying in my bed - kinda spaced out. . . not feeling well at all. 

3/31/2015
Can everyone please say a prayer for Claire. We are on the last week of weaning her off of the seizure meds and every day for last week she has been an emotional basket case (understandably). She is miserable. Can't stop crying, doesn't want to play..