Wednesday, January 28, 2015

More words. No Seizures. Less Medicine.

Something to drink
Yes
Shapes
Sky
Clouds
jump
morning
Car
Baby crying
"Agoooo" (talking to Luke)
Remi
Good boy
Off (talking to Remi)
I want it
I can have it
Dora
Boots
shirt
socks
pants
shoe
milk
juice
teeth
pretty
hair
head
nose
eyes
mouth
sad
I done
chips
cake
bowl
Daddy
Mamma
Here ya go
Go go go
She counts. . . and will start in the middle but actually get them right. . like "twelve thirteen fourteen"
She sings the ABC's. . . not in order, but she sings letters
Jaaaaaaack
Cereal



These are all the things we are hearing Claire say lately. We are on the 4th week of weaning her off of the Onfi. Pretty sure we have about 10 weeks left?? Still seizure free, Hallelujah! And she is putting 3 words together. Which is huge.
I almost feel like Claire seems/feels "lighter" It's like her personality is really coming out. I dont know if that is because the seizures have stopped or because she is on less medicine, or both. A huge side effect of the Onfi is aggression/irritability. And so what I have found interesting as she is coming off of the medicine is how LOVING she is. Omg. She runs up and just hugs me randomly, all day long! I am loving it. She seems way more affectionate. It is very exciting. Thank you for your continued prayers!!!