She's having a seizure every three days or once a week.
She is now also having big seizures a long w her tic like ones. She has had 4 big ones so far. All last under 5 min. These big seizures- she shakes, sometimes seems to not breathe, lips turn a tint of blue and she passes out sleeping right after.
Also, Waiting to hear back from dr Wilfong but the nurse said what I was describing (I thought it was maybe a side effect of meds? Or she was just clumsy) was what some patients have, called drop seizures. *sigh* Claire literally is walking in a straight line, super slow (no reason she should fall) and then just falls flat on stomach and face. Busting her nose. It's bizarre which is why I mentioned it but never thought it could be a type of seizure.
We see him again January 27
