Claire has been on Zonegran and Keppra. . . and SO FAR. . . about 2 -3 weeks. . . she is having maybe 2 seizures a day. and they consist of 1or 2 head nods each. which is a MAJOR improvement. Today we increase dosage of Zonegram to 50 mg twice a day- Instead of 25 mg twice a day.
She had an EEG today- they said it showed nothing different than the previous ones that were done. . .
I know the medicine is working because she has started to say words and imitate words I say. . . She acts like she is understanding more of what we say and trying to communicate herself. Which is what she should have been doing a few months ago. . . It is very encouraging!!!!
We see Dr. Wilfong September 14, so that will be nice to finally talk to him again - instead of through a nurse.
Also found out, she is allergic to something she is eating- which is causes her to have huge, inflamed hives on the skin that the #2 touches. . . and im talking the second it touches her skin she is mad and itching. along with that, her inner thighs are covered in eczema. .which the doctor said is from the allergic reaction?? does not make total sense to me . . . I have to put a steroid cream on the area twice a day for a week. They also took blood to see if it would show what she is allergic to.
