Friday, January 17, 2014

Jan 17, 2014

We go to see Dr. Wilfong today. . . .
Also Claire has been seizure free since Jan 4th! (that is IF she was not having drop seizures and was just being clumsy) She had the drop seizures on the 6th and 7th of Jan.

The Whole Exome Sequencing Genetic testing is supposedly FINALLY STARTED! We had our blood drawn in June I think of 2013. . . So it has taken this long for everyone to get there SH!T together and communicate. I have spent hours and hours and days on the phone with different people and for it finally be over is such a relief.  Hallelujah!!! Minimum - it could take 3 months to get results. . . but it could also take up to a year . . . .

No comments:

Post a Comment